Getting to Know Me
I have had severe health problems my whole life but I never let it stop me.
Despite what so many doctors have said, I made it through childhood, teenage-hood, and I have had two children. I have had brittle asthma since I was 18months old. I lived in a world before ventolin and was told on many occasions that I might die.
Now in my 40’s, I have secondary adrenal failure so I am steroid-dependent. I also have chronic fatigue syndrome and fibromyalgia, which bring their own challenges, as you all know. Hyper-mobility adds to my pain, as do migraines and IBS.
I had a hysterectomy six years ago; nine months later my ovaries were removed, so I am on hormone therapy. I also had a heart ablation and it has helped me, though my heart is still delicate. Through careful exercise I am trying to strengthen it.
I have ocular implants in both eyes following cataract removal a few years back, so I don’t see as well as I used to.
With the help of Xolair bi-weekly and monthly Nucala I have a new chance on life relatively free of allergies. I recently developed Hypogammaglobulinemia (inability to produce immunoglobulins), so I have a weekly infusion of Cuvitru.
This year I started having seizures. But I take it one day at a time, one moment at a time. Survival has always been a priority, and I refuse to let sickness dictate my life. I have a wonderful family and friends, and I truly love life.
Sometimes you just have to take the ugly with the beautiful.
I regret nothing and look forward to the future, and respect the privilege of having every day. I have a beautiful family with a rich history, and love that makes the impossible possible for us all every day. Since childhood I could always see them and hold on to their love. There is nothing stronger in this world than that to keep you going. I love you, my beautiful family, forever.